Information and Guidance
Want to know something about the rare disease suffer?
Have a question about what happens to you? Need to find help for your treatment?
The following service, is intended to reduce the search time for patients and families by providing information and guidance needed.
To make an inquiry we ask, please, complete the form below, the end of it is to guide and provide an appropriate response. Data are provided to private, therefore not be disclosed under any circumstances. Your request can take fifteen (15) business days.
You may also telephone the (+54) (0261) 4291987 or the Helpline: 0800 333 3353 Lunes a Viernes of the 08:00 hs a 12:30 hs.